Chipped Polish & Wornout Jeans

When you are a child you don’t realize how much more there is to losing a loved one than their death. You don’t see the extent of the sickness if they are ill or the difficult choices about medical treatment and care. You only know that your loved one is gone. Being an adult and dealing with it is so much more difficult. I’m learning that now as I sit here, blogging from the hospital room where my Nanny, a woman who has been a very large part of my life, is slowly dying. My Nanny is possibly suffering from a very rare degenerative neurological disease called Atypical Motor Neuron Disease; it is incurable and will eventually claim her life. This has really affected my family, especially my mom who was always close to her mother, and that tears me apart because I am very close to my mom, to the point that I will go to blows with people who mess with her. The family drama that is happening due to crappy relatives only makes this worse.

Right now, as I sit here, my Nanny is dehydrated and a bit emaciated because she cannot eat due to her inability to swallow and she made it very clear that she did not want anything invasive like feeding tubes; my mom and I come and stay at the hospital almost everyday, and early in the week we were actually sleeping at the hospital because we weren’t sure she was going to last the night. We are practically living in the hospital room at the moment. The sad thing is that, while we don’t want a pat on the back or anything, no one seems to appreciate the way we are sacrificing and suffering, and instead either we are ignored or it is implied that we are doing this out of a guilty conscience. We have nothing to be guilty about because we have always taken care of Nanny and been there for her. So all of the drama that is happening on top of my mom losing her mother. Soon I will only have her recipes and the memory of her voice, and I’m not sure how to handle it. I love my Nanny, and I will miss her so much; I already miss her. That is why I’ve made up my mind that the bakery and sweets shop I plan to eventually have will be called “A Taste of Joy” in honor of Barbara Joy Smith, my Nanny, the woman who opened my eyes and introduced me to the joy of cooking.

When I was younger, only about eight or so, I lost my Granddaddy to lung cancer, and I remember only understanding that he was gone. And when I lost my Pa and then my Papa within a few months of each other I was in high school; I was not involved in the decision making process or any of the drama that happened afterward. Now it is entirely different. There are people who must must be called and choices about her care, and most of that is falling to us; the problem is that those who don’t want to make the choices are not happy with the choices we make. It is a painful vicious cycle, and it feels like we simply cannot win. And while I know there is no real victory here, I simply wish there was a way to make things better for my mom, who is suffering because she is losing her mother. I wish my family hadn’t lost their ever loving minds and decided that this is the perfect moment to stir up drama and cause fights, and I wish that we could have peace in this family for once because it is something my Nanny has always dreamed about.